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| A qualitative study on the real experience of ovarian cancer patients with RAD51 gene mutation |
| Beijing Tiantan Hospital Affiliated to Capital Medical University, Beijing, 100070 |
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Abstract To understand the real disease experience of ovarian cancer(OC) patients with restriction association site DNA 51(RAD51) mutation, and to provide theoretical basis for the follow-up development of the corresponding intervention measures of the patients. Methods: Objective sampling method was used to select the ovarian cancer patients with RAD51 gene mutation and without treatment from the department of gynecology in a third-class hospital in Beijing from January 2022 to December 2022 as the research object. The semi-structured interview was conducted with the method of phenomenology, and the on-site recording was made. The interview data were analyzed with the method of Colaizzi phenomenology 7-step analysis to extract the theme. Results: This study summarized and extracted three themes, including the positive and negative emotion coexist, the hope for professional guidance and the change of behavior concept. OC patients with RAD51 gene mutation had obvious negative emotions, but also had a tendency to develop a positive mental attitude. There was a change in the concept of self behavior of the patients. The patients were willing to supervise the behavior of susceptible relatives. The patients had low level of recognition of OC and had hoped to receive professional guidance. Conclusion: The OC patients with RAD51 gene mutation have negative emotions and insufficient cognition, so, medical staff should pay attention to their negative emotions in time, promote their positive mental attitude and correct their bad cognition. Medical institutions should establish the OC genetic testing consultation system as soon as possible to provide the follow-up guidance for the patients after the professional genetic testing.
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